https://datasaveslives.eu/slide-gallery daily 0.75 2019-10-28 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1559565275477-KJ1XAR0ORJ982BOF3L0R/Box1_website.jpeg Slide Gallery https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1559565275477-KJ1XAR0ORJ982BOF3L0R/Box1_website.jpeg Slide Gallery - What are the benefits of sharing your health data? https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1559565207576-84EXB8AW0NN8VXQJSCPB/Box2_website.jpeg Slide Gallery - Why is it important to protect data privacy? Surveys show that members of the public are concerned about what they read and hear about data breaches. People are therefore sometimes anxious about how well their health data can be securely stored and communicated where it is needed. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1559565263177-DAJK0T2XDRO2NDBR7GS8/Box3_website.jpeg Slide Gallery - How can we safeguard the health data? It is expected by patients that researchers who are given access to data in order to conduct research will protect the data with strong security measures, and only use the data for the purposes that are permitted. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1559565280592-JP8L2LB22LB38UAZ1DP8/Box4_website.jpeg Slide Gallery - Who conducts research using health data? There are a number of vitally needed healthcare improvements that are developed by different organisations working together. https://datasaveslives.eu/patient-videos-ihd daily 0.75 2019-09-15 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1567164861287-G9V7SB8H64GH7L40BBXF/image-asset.jpeg i-HD Patient Videos - Mitchell Silva “Patients are really willing to donate data but there is always the aspect of trust” https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907d3b1f1bf0001b6b280/1567164371254/ i-HD Patient Videos https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1567164861287-G9V7SB8H64GH7L40BBXF/image-asset.jpeg i-HD Patient Videos - Mitchell Silva “Patients are really willing to donate data but there is always the aspect of trust” https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907d417027a0001bbfc62/1567164371858/ i-HD Patient Videos - i~HD interview: a patient's perspective on how data influences health and selfcare. https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907d4b3fb3500016b6bc2/1567164372507/ i-HD Patient Videos https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907d4bbd9a90001cbc494/1567164372109/ i-HD Patient Videos https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907d50e90c90001ed30fe/1567164373081/ i-HD Patient Videos - 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i~HD interview: a patient's perspective on how data influences health and selfcare. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1567164381552-GJ89Z0JQI9WJ5YYUU71R/image-asset.jpeg i-HD Patient Videos - i~HD interview: a patient's perspective on how data influences health and selfcare. https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907de30ca710001713ba8/1567164381968/ i-HD Patient Videos - i~HD interview: a patient's perspective on how data influences health and selfcare. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1567164382375-QRZEEPIM555BSNESSHM3/image-asset.jpeg i-HD Patient Videos https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907de4631c100010408a7/1567164382638/ i-HD Patient Videos - i~HD interview: a patient's perspective on how data influences health and selfcare. https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907de4dcaaa00016259d7/1567164382314/ i-HD Patient Videos - 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i~HD interview: a patient's perspective on how data influences health and selfcare. https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907e179b10d00013e63da/1567164385301/ i-HD Patient Videos https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907e17a62c400011fad6b/1567164385301/ i-HD Patient Videos https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907e17fd2740001c6a387/1567164385879/ i-HD Patient Videos https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1567164385824-8RBT9OD20AEX1GRSFUJP/image-asset.jpeg i-HD Patient Videos - i~HD interview: a patient's perspective on how data influences health and selfcare. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1567164384991-EJ4I91HW9XF37CZ2DQF2/image-asset.jpeg i-HD Patient Videos https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907e1fccde60001ca06da/1567164385108/ i-HD Patient Videos - i~HD interview: a patient's perspective on how data influences health and selfcare. https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907e20a362800015f06cb/1567164386711/ i-HD Patient Videos - i~HD interview: a patient's perspective on how data influences health and selfcare. https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907e279b10d00013e63e0/1567164386625/ i-HD Patient Videos https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907e2bacd4c000135159d/1567164386026/ i-HD Patient Videos https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1567164386080-TM1FSQI9TG8CX7G0FXVE/image-asset.jpeg i-HD Patient Videos https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907e2c328b00001edf11e/1567164386358/ i-HD Patient Videos - i~HD interview: a patient's perspective on how data influences health and selfcare. https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907e37a62c400011fad7a/1567164387756/ i-HD Patient Videos - i~HD interview: a patient's perspective on how data influences health and selfcare. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1567164386908-67VI8WUHCWE8M5RYYSX7/image-asset.jpeg i-HD Patient Videos https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907e3aa0298000131117e/1567164387240/ i-HD Patient Videos - i~HD interview: a patient's perspective on how data influences health and selfcare. https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907e3bce42700017dc6b4/1567164387204/ i-HD Patient Videos https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1567164387378-011MIT9OUYAVVE29PFY0/image-asset.jpeg i-HD Patient Videos https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907e3d7b4020001dbe97b/1567164387575/ i-HD Patient Videos - i~HD interview: a patient's perspective on how data influences health and selfcare. https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907e46d340c00013eabf9/1567164388899/ i-HD Patient Videos https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1567164388569-BPS7ULOZXMM255ZHV1OU/image-asset.jpeg i-HD Patient Videos https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907e49efcb10001f83bda/1567164388290/ i-HD Patient Videos https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907e4b1f1bf0001b6b2ec/1567164388243/ i-HD Patient Videos - i~HD interview: a patient's perspective on how data influences health and selfcare. https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907e4cdb83f00013d7a18/1567164387997/ i-HD Patient Videos - i~HD interview: a patient's perspective on how data influences health and selfcare. https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907e4fd82320001442ff1/1567164388117/ i-HD Patient Videos https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907e50a362800015f06dc/1567164389637/ i-HD Patient Videos - i~HD interview: a patient's perspective on how data influences health and selfcare. https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907e59efcb10001f83be0/1567164388881/ i-HD Patient Videos - i~HD interview: a patient's perspective on how data influences health and selfcare. https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907e59efcb10001f83be4/1567164389173/ i-HD Patient Videos https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907e59efcb10001f83be9/1567164389722/ i-HD Patient Videos https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1567164389858-4WQLIYM2DZBCHOYRZDMB/image-asset.jpeg i-HD Patient Videos https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1567164390752-DV14VNS01MP4EIPVM2IW/image-asset.jpeg i-HD Patient Videos https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1567164390047-D7NTU84EV2A2QH6ALAT6/image-asset.jpeg i-HD Patient Videos https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907e668a6d30001255d2b/1567164390543/ i-HD Patient Videos https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1567164390281-0P8RSXPDUQ0R9J1UOQFD/image-asset.jpeg i-HD Patient Videos - i~HD interview: a patient's perspective on how data influences health and selfcare. https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907e6a5901b00010af8b3/1567164390658/ i-HD Patient Videos - i~HD interview: a patient's perspective on how data influences health and selfcare. https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907e6bacd4c00013515b1/1567164390025/ i-HD Patient Videos - i~HD interview: a patient's perspective on how data influences health and selfcare. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1567164390902-FWZBJXU04GWN5LUOL2UL/image-asset.jpeg i-HD Patient Videos https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907e748b46d00010c7c07/1567164391365/ i-HD Patient Videos https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907e7695995000191ddd6/1567164391592/ i-HD Patient Videos https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1567164391381-P1G2RHOMA896MT8Q05MF/image-asset.jpeg i-HD Patient Videos - i~HD interview: a patient's perspective on how data influences health and selfcare. https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907e7b1f1bf0001b6b303/1567164391224/ i-HD Patient Videos - i~HD interview: a patient's perspective on how data influences health and selfcare. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1567164390902-FWZBJXU04GWN5LUOL2UL/image-asset.jpeg i-HD Patient Videos https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907e7bbd9a90001cbc532/1567164391365/ i-HD Patient Videos https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907e7cdb83f00013d7a2a/1567164391053/ i-HD Patient Videos - i~HD interview: a patient's perspective on how data influences health and selfcare. https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907e806ac8a0001bf6b8a/1567164392745/ i-HD Patient Videos - i~HD interview: a patient's perspective on how data influences health and selfcare. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1567164391987-CXBH6E1HQQ0KTY1WXGRO/image-asset.jpeg i-HD Patient Videos https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907e87a62c400011fad95/1567164392517/ i-HD Patient Videos https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907e8a5901b00010af8bd/1567164391848/ i-HD Patient Videos - i~HD interview: a patient's perspective on how data influences health and selfcare. https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907e8b1f1bf0001b6b30b/1567164391848/ i-HD Patient Videos - i~HD interview: a patient's perspective on how data influences health and selfcare. https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907e8d3361e00011b4a75/1567164392268/ i-HD Patient Videos - i~HD interview: a patient's perspective on how data influences health and selfcare. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1567164392876-QWTVUFIDPX0NAHNZBOQQ/image-asset.jpeg i-HD Patient Videos - i~HD interview: a patient's perspective on how data influences health and selfcare. https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d6907e9b1f1bf0001b6b314/1567164393022/ i-HD Patient Videos https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1567164461734-810BS1ZP7649NPH0W7W4/image-asset.jpeg i-HD Patient Videos - i~HD interview: a patient's perspective on how data influences health and selfcare. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1567164781962-GN0Y6EII2QCO6MUIYL2T/image-asset.jpeg i-HD Patient Videos - Robert Johnstone “I fully support better use of health data for research … provided that assurances can be given that the data are well protected” https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d6907b8b98ae8000147c09a/5d69096d7a62c400011fe261/1567164772670/ i-HD Patient Videos - i~HD interview: a patient's perspective on how data influences health and selfcare. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1567165028221-JQ6X9FM80KINELYLYN00/image-asset.jpeg i-HD Patient Videos - Hanna Svensson “We need to co-operate much more in-between different parts of the health care system but also between the health care system and patients” https://datasaveslives.eu/videousemydata daily 0.75 2019-10-30 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1567434206728-YLP9G2TRDUH0UTDI4DMZ/Usemydatavideo1.JPG UseMYdata Video Interviews - UseMydata Interview https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1567434206728-YLP9G2TRDUH0UTDI4DMZ/Usemydatavideo1.JPG UseMYdata Video Interviews - UseMydata Interview https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1567435176967-0MN1FEFMM5H8P6I9LO3J/Usemydatavideo1.JPG UseMYdata Video Interviews - Nicole Larkin “Making drugs improves treatment, but data should have controls around it” https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1567435249328-5WP0GLMZN8X2VX6TRL26/mticehurst_usemydata_videos.JPG UseMYdata Video Interviews - Margaret Ticehurst “I think everyone should give [their data] willingly” https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1567435297099-UGV4P8V683NO0GAV3LPG/Usemydatavideo3.JPG UseMYdata Video Interviews - Christie Allmark “I want my data to be used for the benefits of research” https://datasaveslives.eu/teamgallery daily 0.75 2019-09-04 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1559550329647-Q2YW15C027OC5WQ1CIMS/nicola_logo_web.jpg Team Gallery https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1559550329647-Q2YW15C027OC5WQ1CIMS/nicola_logo_web.jpg Team Gallery - Nicola Bedlington Nicola Bedlington has been European Patient Forum's Special Advisor since late April 2019. She used to be Secretary General of EPF, and was previously the Executive Director since the setting up of the EPF Secretariat in June 2006. She worked as an external expert for the European Commission on disability policy and NGO cooperation and was the first Director of the European Disability Forum during the 90s. More recently she led the ENSI Secretariat, an OECD initiated international governmental network on education and sustainable development. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1559310039328-RAWB6TMB9UUGWWNDTZVD/Kalra.jpg Team Gallery - Dipak Kalra Dipak Kalra is President of The European Institute for Innovation through Health Data (i~HD). He plays a leading international role in research and development of Electronic Health Records, including the requirements and models to ensure the robust long-term preservation of clinical meaning and protection of privacy. He leads the development of ISO standards on EHR interoperability, personal health records, EHR requirements, and has contributed to several EHR security and confidentiality standards. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1559550365448-LYSX9NP4ATM68ZL4Z1SB/gozdesusuzlu.jpg Team Gallery - Gözde Susuzlu https://datasaveslives.eu/editorial-board daily 0.75 2020-09-21 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1567591371867-TSTOFMNLO5E75T773JFZ/Mary_Tully.jpg Editorial Board - Dr. Mary Tully (Chair) Reader in Pharmacy Practice, Manchester Pharmacy School, Director of Public Engagement, Connected Health Cities and Lead for Public Engagement, HeRC https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1567591371867-TSTOFMNLO5E75T773JFZ/Mary_Tully.jpg Editorial Board - Dr. Mary Tully (Chair) Reader in Pharmacy Practice, Manchester Pharmacy School, Director of Public Engagement, Connected Health Cities and Lead for Public Engagement, HeRC https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1567591407287-KSVGKF9K0DUFNW5BLCB6/Birgit_Bauer.jpg Editorial Board - Birgit Bauer Social Media & Digital Health Expert, Journalist, Speaker and Analyst, EUPATI Fellow 2015 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1567591432728-SO8HTUFX76XPTLYAWN3Q/David_Smith.jpg Editorial Board - Prof. David Smith Associate Professor of Health Care Ethics https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1567591535458-KKCCS811LUKS0KAJDU0E/Petra_Wilson.jpg Editorial Board - Dr. Petra Wilson Manager at Health Connect Partners, EU Programme Director for Personal Connected Health Alliance, and senior advisor on digital health for FTI Consulting https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1567591567770-YRTZGNC8WNZROVYV40TC/Ania+Henley+2018.JPG Editorial Board - Ania Henley Adviser on the National Institute of Health Research (NIHR) Biomedical Research Centre (BRC) Patient and Public Panel at Imperial College, an EIT External Adviser https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1567597324986-YW9E12LHCI2H5X732NF0/Nicola_Davies.jpg Editorial Board - Dr. Nicola Davies PhD in Health Psychology and Consultant Medical Writer https://datasaveslives.eu/emsp-videos daily 0.75 2019-09-11 https://static1.squarespace.com/static/5cc8208b90f904c71c744000/t/5d78ae68ed352529e4e88099/1567758860986/ EMSP Videos https://static1.squarespace.com/static/5cc8208b90f904c71c744000/5d7219bf0aa04000013e1266/5d7219fdd8766100019c6884/1567758860986/ EMSP Videos https://datasaveslives.eu/casestudies daily 0.75 2022-11-23 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/f895cc75-029b-4bca-8a85-992510320a42/Biogen+casestudy+image.jpg CaseStudies - Patient registries are a valuable source of real-world data (RWD) Spinal Muscular Atrophy (SMA) is a rare genetic and progressive neuromuscular condition, which occurs in around 1 in every 6,000 to 10,000 live births. While symptoms do vary from person to person, it causes progressive muscle weakness and wasting. It can have significant health impacts. In severe cases, if left untreated, it is usually fatal by the age of around two years. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/f895cc75-029b-4bca-8a85-992510320a42/Biogen+casestudy+image.jpg CaseStudies - Patient registries are a valuable source of real-world data (RWD) Spinal Muscular Atrophy (SMA) is a rare genetic and progressive neuromuscular condition, which occurs in around 1 in every 6,000 to 10,000 live births. While symptoms do vary from person to person, it causes progressive muscle weakness and wasting. It can have significant health impacts. In severe cases, if left untreated, it is usually fatal by the age of around two years. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1662563960277-2R7CT0G1BJIPNQ3EH7QQ/31%2BSep%2Bpills-384846_1920.jpg CaseStudies - Using real world data (RWD) In this case study we examine how analysis of real-world patient data gathered from local Health Units can be a useful tool to assess adherence to treatment… https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1657109529013-4KLC0WD9C8AL95ST2F5C/brain_tumor_case_sudy.jpg CaseStudies - Using National Cancer Registry data Using National Cancer Registry data for the benefit of the brain tumour community https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1617197724979-KK6802BYS3B7OR3GTPZ9/CaseStudy_website.jpeg CaseStudies - Helping the Fight Against Alzheimer's Discovering a test to detect those at risk of developing Alzheimer's Disease https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1594041332135-FUJ6TV27RZTAZZZ6HCMN/DSL-home-4-cancer_opt2-stg1.jpg CaseStudies - Early Detection of a Cancer Killer Helping identification of people at high risk of colorectal cancer from an existing blood test https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1657107561975-FHBUVNH7NG5I8WPIH6XW/brain_tumor_case_sudy.jpg CaseStudies - Using National Cancer Registry data Using National Cancer Registry data for the benefit of the brain tumour community https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1573121754990-6XZCKX02U89W1MK1HAG6/liver_desease.jpeg CaseStudies - A link between Body Mass Index and non-alcoholic fatty liver disease Analysis of over 2 million anonymous patient records to establish how increasing body weight approaching obesity increases the risk of developing liver disease https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1572354311867-RIQZEEA1VLRV5VX2ADEX/colon_preview.jpeg CaseStudies - 450.000 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1594041115995-444OVKH3HSNKT7TMT8SG/DSL-home-3-bigdata_blackbg-stg1.jpg CaseStudies - Big Data’ used for the early identification of other diseases associated with cancer A novel computer programme to help doctors and scientists to better understand which other diseases are likely to occur in patients with cancer. https://datasaveslives.eu/blog daily 0.75 2025-07-30 https://datasaveslives.eu/blog/data-saves-lives-a-compass-for-digital-health-communication-in-germany72025 monthly 0.5 2025-07-29 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/a2dd89e1-cf0f-42c3-a26a-162d40a891ff/Bildschirmfoto%2B2025-04-06%2Bum%2B22.03.47.png Blog - Data Saves Lives: A Compass for Digital Health Communication in Germany - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://datasaveslives.eu/blog/ensuring-patient-readiness-for-the-european-health-data-space-interview-with-milana-trucl72025 monthly 0.5 2025-07-16 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/4943485d-d48c-4042-89d5-87c3ea6a7d54/milanatrucl_patientreadiness_ehds.png Blog - Ensuring patient readiness for the European Health Data Space: interview with Milana Trucl - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://datasaveslives.eu/blog/pedri-improving-public-engagement-in-data-research72025 monthly 0.5 2025-07-16 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/01a5d9b7-2991-4dc1-bfbc-2a31b9955084/Picture1.jpg Blog - PEDRI: Improving public engagement in data research - Make it stand out Jan Speechley (PEDRI Public Partner, left) and Nicola Hamilton (former Head of Understanding Patient Data, right) presenting a poster on the Good Practice Standards at the European Patient Forum Conference back in November 2024. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/f7747e61-4c5d-464b-9ed4-e0ef7e667420/Picture2.png Blog - PEDRI: Improving public engagement in data research - Make it stand out A timeline of the evolution of the Good Practice Standards from 2023 to 2025 and beyond. https://datasaveslives.eu/blog/participate-in-a-survey-on-the-use-of-artificial-intelligence-in-healthcare62025 monthly 0.5 2025-06-20 https://datasaveslives.eu/blog/cybersecurity-an-essential-investment-for-protecting-hospitals-and-patient-safety42025 monthly 0.5 2025-06-20 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/7bc69e3a-f6f6-41b0-b1d3-0c88b8418b03/SM_photo.jpg Blog - Cybersecurity: An essential investment for protecting hospitals and patient safety - About the author Sascha Marschang is a Senior Advisor at the European Hospital and Healthcare Federation (HOPE). His work primarily focuses on the digital transformation of health and care - including the implementation of the European Health Data Space, AI Act and EU Cybersecurity Framework - and its everyday impacts on the sector. His main interest lies in supporting a human-centric, democratic integration of digital technologies that generates tangible benefits for healthcare institutions, their staff and patients. This should include robust safeguards for protecting fundamental rights and tackling the digital divide. https://datasaveslives.eu/blog/fifth-anniversary-event-summary-report monthly 0.5 2025-03-25 https://datasaveslives.eu/blog/analysis-of-the-ehds-regulation-and-its-implications-for-patients22025 monthly 0.5 2025-03-05 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/a1a3afef-9e7a-4945-b364-9a1a8ba4e287/Milana+%28EHDS%29.png Blog - The EHDS Regulation and its implications for patients - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://datasaveslives.eu/blog/health-democracy-for-health-data-in-france monthly 0.5 2025-01-20 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/3edb8d56-d8c3-4632-bea0-351905dd74b2/444_33A2744.jpg Blog - Health democracy for health data in France - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://datasaveslives.eu/blog/celebrating-five-years-of-impact monthly 0.5 2024-12-13 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1734086180991-PTZJXZPDM3R4C68W9ELI/004_33A6805.JPG Blog - Celebrating five years of impact https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1734086099873-A34ZFVE59ORTQ0PV8DM6/DSL.png Blog - Celebrating five years of impact https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1734087214776-IQ3IG8BI7299RQU3X166/138_33A9392.JPG Blog - Celebrating five years of impact https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1734087608208-MAU144GPXMOUCTZE6H41/316_33A7184.JPG Blog - Celebrating five years of impact https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1734086602546-HZPKLFLTFURSUCP4MH9Q/453_33A2781.JPG Blog - Celebrating five years of impact https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1734087561111-S96HOAWP4XH0H4CSK9YF/122_33A4675-2-2.JPG Blog - Celebrating five years of impact https://datasaveslives.eu/blog/towards-a-patient-centric-healthcare-system-a-focus-on-electronic-health-records112024 monthly 0.5 2024-11-21 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/2a413b43-594c-4cba-9378-f1ae9697ea65/pexels-pixabay-415779-1536x1024.jpg Blog - Towards a patient-centric healthcare system: A focus on Electronic Health Records - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://datasaveslives.eu/blog/dsl-x-ehden-patient-registries-bootcamp12024 monthly 0.5 2024-01-05 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/b7841f48-76f0-4292-b4ba-f260a2ac73de/GArPMV_XQAAdvG5.jpg Blog - DSL x EHDEN Patient Registries Bootcamp - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://datasaveslives.eu/blog/empowering-our-members-with-the-knowledge-needed-to-embrace-a-brave-new-digital-world92023 monthly 0.5 2023-09-05 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/47b3906f-4146-48a1-9635-81d65e38b4b6/Natasha+Munch+image+card.png Blog - Empowering our members with the knowledge needed to embrace a brave new digital world - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://datasaveslives.eu/blog/gqyliew06taq1wnfwlq3xlm3xwfc2b92023 monthly 0.5 2023-09-04 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/0f1c1b36-0125-49e6-9025-3a25b7ddfb6a/Angelica+image+card.png Blog - The promising future of health data and AI: the role of patient groups - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://datasaveslives.eu/blog/whats-the-greatest-untapped-resource-in-healthcare-right-now-hint-youre-probably-holding-it-on-your-phone52023 monthly 0.5 2023-05-11 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/7fd5494b-f9cb-4140-acae-acf905db1a6a/Madeleine+Blog+pic.jpg Blog - What’s the greatest untapped resource in healthcare right now? Hint: you’re probably holding it on your phone - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/aecf7c33-c9fd-4ca6-9c99-0e202208f329/Picture1.png Blog - What’s the greatest untapped resource in healthcare right now? Hint: you’re probably holding it on your phone - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/b1c504f6-53cf-452c-9619-11e66006c0c2/Picture2.png Blog - What’s the greatest untapped resource in healthcare right now? Hint: you’re probably holding it on your phone - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/4b8445f2-2637-4a53-9b14-4362c7a1b612/Screenshot+%285%29.png Blog - What’s the greatest untapped resource in healthcare right now? Hint: you’re probably holding it on your phone - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://datasaveslives.eu/blog/concentric-circles-view-ccv-what-does-this-mean-for-how-we-protect-patients-when-using-their-health-data52023 monthly 0.5 2023-05-08 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/b4c6b406-59c6-45cf-8aba-1410f003ff46/hacker-1944688_1280+%281%29.jpg Blog - Concentric Circles View (CCV) – What does this mean for how we protect patients when using their health data - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1f6d5153-b17f-4af0-b4cf-65058c33f874/Picture1.jpg Blog - Concentric Circles View (CCV) – What does this mean for how we protect patients when using their health data - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://datasaveslives.eu/blog/dsl-ambassador-training-bootcamp42023 monthly 0.5 2023-04-17 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/9487cff1-f274-4d2f-9853-ce7e047d3600/DSL_bootcamp2_pic_cover.jpg Blog - DSL Ambassador Training Bootcamp - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/2c7dbcee-5a5c-48f6-8101-1321d725d00f/AI+event+pictures.png Blog - DSL Ambassador Training Bootcamp - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://datasaveslives.eu/blog/the-importance-of-having-data-at-our-fingertips-to-guide-us-through-a-crisis42023 monthly 0.5 2023-05-03 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/eeff3754-f1c7-49c6-aedd-513f939f8f7e/New+graphic.PNG Blog - The importance of having data at our fingertips to guide us through a crisis - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://datasaveslives.eu/blog/lucas monthly 0.5 2023-02-14 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/51df3bc5-4c4f-47d0-beb0-484ed25b2acd/Margaux+and+Lucas.PNG Blog - Lucas - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://datasaveslives.eu/blog/how-understanding-data-protection-and-collection-techniques-deepened-our-understanding-of-the-prevalence-of-chronic-pain22023 monthly 0.5 2023-02-03 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/757a6c0c-77d4-4bae-b060-5eea2711fd4a/Chris+Vella+image+card.PNG Blog - How understanding data protection and collection techniques deepened our understanding of the prevalence of chronic pain - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://datasaveslives.eu/blog/data-sharing-mental-ill-health-12023 monthly 0.5 2023-01-24 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1674557594629-XJTUW8S9VO7W405FK4Y3/John+Saunders+blog.PNG Blog - Data sharing with carers of individuals suffering severe mental ill health: A nuanced view - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://datasaveslives.eu/blog/dslbootcamp2022 monthly 0.5 2022-11-23 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/0bb67e48-9a8d-473c-ae71-de4b5ffd09a1/DSL_bootcamp_pic1.jpeg Blog - Reflections on our Ambassador Training Bootcamp - #DataSavesLives - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/29a82fdc-9542-44e6-96c8-1bb9469bf855/DSL_bootcamp_pic2.jpg Blog - Reflections on our Ambassador Training Bootcamp - #DataSavesLives - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/ddd29c11-2c85-4736-8bb0-e1a1b1e6cb77/DSL_bootcamp_pic3.jpeg Blog - Reflections on our Ambassador Training Bootcamp - #DataSavesLives - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/df2271bb-7096-45f4-8e42-4c43ef957f83/DSL_bootcamp_pic_cover.jpeg Blog - Reflections on our Ambassador Training Bootcamp - #DataSavesLives - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/c82937d0-226c-470d-a046-3c58e9bc8198/DSL_bootcamp_pic5.jpg Blog - Reflections on our Ambassador Training Bootcamp - #DataSavesLives - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://datasaveslives.eu/blog/a-cross-hemisphere-quest-in-the-name-of-health-data92022 monthly 0.5 2022-09-27 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/91b21b41-3fa5-4f73-83ab-2831da25f1d1/globe-3383088_1920.jpg Blog - A cross-hemisphere quest in the name of health data - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/6224544d-1e08-444b-8419-4984a5f9935d/clara_heathcock_blog.png Blog - A cross-hemisphere quest in the name of health data - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://datasaveslives.eu/blog/how-can-we-support-the-health-data-journey-290722 monthly 0.5 2022-07-28 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/f03f5dba-75b7-4482-92ea-bea15da92b99/DSL_session_Congress2022.JPG Blog - How can we support the patient data journey throughout the healthcare system to build public trust? - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/69edaf81-6c80-480f-8a64-52bf51ad6657/DSL_session_Congress2022_2.JPG Blog - How can we support the patient data journey throughout the healthcare system to build public trust? - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://datasaveslives.eu/blog/using-national-cancer-registry-data-060722 monthly 0.5 2022-07-07 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1657108398620-5T0PNF923JVOLL51OU9W/unsplash-image-so1L3jsdD3Y.jpg Blog - Making patient registries work for patients – accessing data to drive better outcomes - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://datasaveslives.eu/blog/patient-driven-insights-m-health-development42022 monthly 0.5 2022-04-26 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/077c8cc7-e792-4da0-8b95-41c3124d7077/UAG+GH+DSL+Blog+pic.jpg Blog - Patient driven insights are the key to unlocking the future of m-health development - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/cfc2afbb-1d18-400a-bd51-96acfb6e9003/Gravitate+Health+Jane+Giudice+photo.png Blog - Patient driven insights are the key to unlocking the future of m-health development - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://datasaveslives.eu/blog/mind-the-gap-the-importance-of-measuring-inequalities-in-healthcare32022 monthly 0.5 2022-03-29 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/b057d7ac-2846-4cd2-834b-b1739b5e4fe3/mind_the_gap_blog_image.jpg Blog - Mind the Gap: The importance of measuring inequalities in healthcare - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://datasaveslives.eu/blog/the-benefits-of-a-personal-health-record-1003 monthly 0.5 2022-03-10 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/320782dc-4984-4e5f-a3b8-f7016c50ce01/medical-image.jpg Blog - The benefits of a Personal Health Record [PHR] - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/f267bacc-0a87-456f-a106-2cd087165898/Fran_husson.jpg Blog - The benefits of a Personal Health Record [PHR] - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://datasaveslives.eu/blog/what-happened-this-year-what-is-next monthly 0.5 2021-12-14 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/547a2dc9-268c-47c4-9e49-9b45cc89f1e1/Data+Saves+Lives+Secondary+Logo+Pos+CMYK_low.jpg Blog - What happened this year? And what is next? - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1622198752896-KIWOKVX82MUVXIUD6S91/Birgit_Bauer.jpg Blog - What happened this year? And what is next? - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://datasaveslives.eu/blog/in-my-shoes10421 monthly 0.5 2021-10-04 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1633353638657-47L3PGF65Y4KK4TKPN6C/walk-in-my-shoes-bb-dsl.jpeg Blog - Can you walk in my shoes? – decision makers and their influence on patient lives - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1622198752896-KIWOKVX82MUVXIUD6S91/Birgit_Bauer.jpg Blog - Can you walk in my shoes? – decision makers and their influence on patient lives - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://datasaveslives.eu/blog/involving-the-public-across-the-spectrum-of-health-data-usage monthly 0.5 2021-09-20 https://datasaveslives.eu/blog/what-happens-when-your-health-data-lives-in-a-different-country-to-you-exploring-the-contradictions-of-cross-border-care62021 monthly 0.5 2021-06-28 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1624891462865-4GC1YHO4RUP2SD99FW1O/AdobeStock_299105866.jpeg Blog - What happens when your health data lives in a different country to you? Exploring the contradictions of cross-border care - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1624890077414-7N81DLLM4NA21Y66BFDE/Natalia+Maeva.jpg Blog - What happens when your health data lives in a different country to you? Exploring the contradictions of cross-border care - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://datasaveslives.eu/blog/how-data-and-other-technologies-are-revolutionising-healthcare-an-overview62021 monthly 0.5 2021-06-22 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1624348782136-DQT8W1RDQ0TQ3O3E90HB/Data_healthcare_blog.jpg Blog - How Data and Other Technologies Are Revolutionising Healthcare: An Overview - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://datasaveslives.eu/blog/independent-patient-advocates-n1-or-nmany52021 monthly 0.5 2021-05-28 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1622206672649-Q9H83XAU2E98JLZIGDV1/blog_birgit_bauer_2021.jpeg Blog - Independent Patient Advocates N=1 or N=many? - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1622198752896-KIWOKVX82MUVXIUD6S91/Birgit_Bauer.jpg Blog - Independent Patient Advocates N=1 or N=many? - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://datasaveslives.eu/blog/how-can-artificial-intelligence-ai-help-us-prepare-for-the-next-pandemic52021 monthly 0.5 2021-05-04 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1620140138104-AKSMOJF91WORHXLXNIUK/AI_blog.jpeg Blog - How can Artificial Intelligence (AI) help us prepare for the next pandemic? https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1620133768918-89J561LW2Q8O1LBE5S4S/Mstrubin.jpg Blog - How can Artificial Intelligence (AI) help us prepare for the next pandemic? https://datasaveslives.eu/blog/understanding-the-power-of-the-quantified-self09042021 monthly 0.5 2021-04-09 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1617971585710-YQL5B0RVCG4LDZLHGRRZ/personaldata.jpeg Blog - Understanding the power of the ‘quantified self’: how does citizen-generated health data compare to that collected by clinicians? https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1617969329222-TDEQ0O2UP6PMFVC92XA7/sara_riga.jpg Blog - Understanding the power of the ‘quantified self’: how does citizen-generated health data compare to that collected by clinicians? https://datasaveslives.eu/blog/are-the-statistics-from-covid-19-vaccine-trials-understood32021 monthly 0.5 2021-03-25 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1616667325237-D44MN671N4ATI48VJM6N/Covidblogpic.jpg Blog - Are the statistics from COVID-19 vaccine trials understood? https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1616667393874-LR5L936ECX1K1O6ZZJTM/Vaccine1.jpg Blog - Are the statistics from COVID-19 vaccine trials understood? https://datasaveslives.eu/blog/what-do-we-mean-by-data-altruism32021 monthly 0.5 2021-03-09 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1615299785294-C16IK9K3UFGR43GM2Y9S/altruism_blog.jpeg Blog - What do we mean by data altruism? Exploring how patients can ‘donate’ their data for societal benefit https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1615300880456-UIN9GISVUYWE9GF9AM46/alastair_kent.jpg Blog - What do we mean by data altruism? 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Data Saves Lives First Webinar: Addressing the unanswered questions https://datasaveslives.eu/blog/all-about-dsl-27072020 monthly 0.5 2020-08-04 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1595860197366-8AG9OWP21MUZ7THM3ROG/dsl_webinar_image.png Blog - All About ‘Data Saves Lives’: Questions and Answers from our first public webinar! https://datasaveslives.eu/blog/follow-science-data-20072020 monthly 0.5 2020-08-24 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1595257505207-TPIIJ4EBPUODEPPHVP2J/Follow+the+Science_Follow+the+Data.jpg Blog - Follow the Science, Follow the Data: the importance of using real-time data to respond to the effect of the COVID-19 pandemic on cancer https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1595256959807-EOLJHKU7XA9E2O88I9LA/mark_lawler.JPG Blog - Follow the Science, Follow the Data: the importance of using real-time data to respond to the effect of the COVID-19 pandemic on cancer 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https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1573121754990-6XZCKX02U89W1MK1HAG6/liver_desease.jpeg Case Studies https://datasaveslives.eu/contact-1 daily 0.75 2025-02-14 https://datasaveslives.eu/case-colorectal-cancer daily 0.75 2019-11-07 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1559832637392-G9FBWUS0UJC684R8QJCA/colon_cancer.jpg Case Study Colorectal Cancer https://datasaveslives.eu/privacy-policy daily 0.75 2019-08-30 https://datasaveslives.eu/aboutdsl daily 0.75 2024-07-03 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1568206266842-Y7NWR38FGC6LD1LVP27Z/Data+Saves+Lives+Hashtag+Logo+Blue.jpg What is DataSavesLives https://datasaveslives.eu/editorialboard daily 0.75 2019-10-30 https://datasaveslives.eu/eugdpr daily 0.75 2019-11-07 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1573137826309-55S2ZPTOWFF976281IOB/iHD+GDPRPrinciples.png EU GDPR https://datasaveslives.eu/how-safeguard-health-data daily 0.75 2022-01-25 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/ed295e3e-61eb-466f-a679-760c8c15903e/iHD%2BDataProtectionPrinciples.png How should researchers safeguard - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://datasaveslives.eu/glossary daily 0.75 2022-04-26 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1594142549364-JAINLPP5TB75YAZAJGBO/DSL-resources_glossary-stg4.png Glossary https://datasaveslives.eu/disclaimer daily 0.75 2019-08-30 https://datasaveslives.eu/privacynotice daily 0.75 2019-08-30 https://datasaveslives.eu/video-interviews daily 0.75 2020-07-07 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1594142604701-XRBRI1TCAFB6J6HNDBTJ/DSL-resources_video-stg4.png Videos https://datasaveslives.eu/anonymisation daily 0.75 2019-09-04 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1567608075557-DHH5INOI5R2B5M0R50P3/Anonymisation.JPG Anonymisation https://datasaveslives.eu/datasaveslives daily 0.75 2023-01-26 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1567604029776-0E8XTSBOV63B8309XE45/datasaveslives_hashtag_handle.jpg #DataSavesLives Stephen Melia, #DataSavesLives creator, Health eResearch Centre and Connected Health Cities, The University of Manchester https://datasaveslives.eu/core-group daily 0.75 2023-01-24 https://datasaveslives.eu/governance-editorial-principles daily 0.75 2020-06-25 https://datasaveslives.eu/resource-overview daily 0.75 2020-07-07 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1594142417085-209N5U32CATLJP1O5OH0/DSL-resources_case_studies-stg4.png Survey Overview https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1594142477498-IFZ0S5MRE87WGBUAUCS1/DSL-resources_public_surveys-stg4.png Survey Overview https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1594142549364-JAINLPP5TB75YAZAJGBO/DSL-resources_glossary-stg4.png Survey Overview https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1594142604701-XRBRI1TCAFB6J6HNDBTJ/DSL-resources_video-stg4.png Survey Overview https://datasaveslives.eu/liver-disease daily 0.75 2019-10-31 https://datasaveslives.eu/survey-summaries daily 0.75 2020-07-07 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1594142477498-IFZ0S5MRE87WGBUAUCS1/DSL-resources_public_surveys-stg4.png Public Surveys https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1579272347920-W1Z09JULX6Y2D9BTGEV6/public_opinion_GDPR_001.jpg Public Surveys https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1568570144354-LMEXPD1NASIINLI66ZMY/connectedhealth_jury.jpg Public Surveys https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1568121740207-M3LC0QQ3MHVJ0JXEUXEN/personal_data.jpg Public Surveys https://datasaveslives.eu/personal-data daily 0.75 2019-11-07 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1568124142861-GU90IB6RM88RTMXR4TT8/personal_data.jpg Personal Data https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1568124253167-CH7MUFJPEUN353D9916I/personal_data2.jpg Personal Data https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1568124346283-VJ65P0Z1E97VSY7NHAZ7/personal_data3.jpg Personal Data https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1568124511301-Z9PHLEH9OAUB9T9ZMICT/personal_data4.jpg Personal Data https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1568124580748-31NFDS5SJOXX4T04NS5W/personal_data5.jpg Personal Data https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1568124650928-YUOGRSQE0ZC0PD0FN0MF/personal_data6.jpg Personal Data https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1568124719433-T7FGP3ENHC5XEPLM6U3U/personal_data7.jpg Personal Data https://datasaveslives.eu/pseudonymisation daily 0.75 2019-09-16 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1568358629237-IY14LCELQH75CW3TTW0W/Pseudonymisation.jpg Pseudonymisation https://datasaveslives.eu/citizens-juries daily 0.75 2019-11-07 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1568570144354-LMEXPD1NASIINLI66ZMY/connectedhealth_jury.jpg Citizens' Juries https://datasaveslives.eu/case-overview daily 0.75 2024-11-06 https://datasaveslives.eu/big-data daily 0.75 2020-07-06 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1594046347281-KE2V9WJ7T6OK2FX7XMD3/DSL-health_data-2-diagram1-stg1.png What is big data? https://datasaveslives.eu/who-conduct-research daily 0.75 2019-09-15 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1558536508618-1Z6F7FAZ6GIR1JC2CW2V/Box4_website.jpeg Who conducts research using health data? https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1568575265270-09LG7T22MG5XK23M6OZF/Who_research.jpg Who conducts research using health data? https://datasaveslives.eu/health-data-overview daily 0.75 2022-01-04 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1594049054245-CKENSLJIWFRUCGDK3P1U/DSL-health_data-1-hero-static-stg3.png Overview https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1594046347281-KE2V9WJ7T6OK2FX7XMD3/DSL-health_data-2-diagram1-stg1.png Overview https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1594049337828-PHQLUI40CGAPAM134N3Q/DSL-health_data-3-diagram2-stg3.png Overview https://datasaveslives.eu/what-is-health-data daily 0.75 2020-07-06 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1594049054245-CKENSLJIWFRUCGDK3P1U/DSL-health_data-1-hero-static-stg3.png What is health data? https://datasaveslives.eu/dataprotection daily 0.75 2020-08-27 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1573136770564-KLJJD8W3A1PL60SO3R92/iHD+DataProtectionPrinciples.png Data protection https://datasaveslives.eu/why-is-health-data-important daily 0.75 2020-07-08 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1594049337828-PHQLUI40CGAPAM134N3Q/DSL-health_data-3-diagram2-stg3.png Why is health data important? https://datasaveslives.eu/codes-of-practice daily 0.75 2019-11-07 https://datasaveslives.eu/information-security-measures daily 0.75 2019-10-31 https://datasaveslives.eu/big-data-case daily 0.75 2020-01-17 https://datasaveslives.eu/public-opiniongdpr daily 0.75 2020-01-17 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1579272347920-W1Z09JULX6Y2D9BTGEV6/public_opinion_GDPR_001.jpg Health Data in the GDPR era https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1579272871501-840AICI6EQ2P7S499AJR/public_opinion_GDPR_002.jpg Health Data in the GDPR era https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1579272956841-EX6NASXLJBZWVOZ4WRQS/public_opinion_GDPR_003.jpg Health Data in the GDPR era https://datasaveslives.eu/advisory-board daily 0.75 2023-01-24 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1601988589261-1SNUPMU7MP3WZE5HQV27/Terje%2BPeetso.jpg Advisory Board - Terje Peetso Member Of The Management Board · ‎North Estonia Medical Centre https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1601988741893-KHOG1Z7X99MOZR1H1420/mark_lawler.jpg Advisory Board - Professor Mark Lawler Chair in Translational Cancer Genomics at Queen's University Belfast https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1601989894041-OPBYHH8JRZTPEJ2XSY91/robert_greene.jpg Advisory Board - Robert S. Greene HungerNdThirst Foundation https://datasaveslives.eu/introductioncase daily 0.75 2022-11-23 https://datasaveslives.eu/blogs daily 0.75 2022-04-13 https://datasaveslives.eu/dslsurvey daily 0.75 2021-09-27 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1632739837307-EGRKD63949MBIG5JA44O/DSL+SURVEY+%284%29.gif Do you trust in sharing of health data? - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://datasaveslives.eu/toolkit daily 0.75 2025-05-12 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/c7df8212-dcca-444c-afc7-59f03ee61ca0/DSL+Toolkit+EHDS+-+Final_Page_01.png Toolkit - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/9afef5b5-3714-4fe4-a1c8-22cb25d3b884/Screenshot+2024-04-10+103441.png Toolkit - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/aff664c9-47e1-4cf6-809a-bf5a3d7d4f8a/Screenshot+2024-04-10+103419.png Toolkit https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/0f1bd24c-18dc-4bb1-ba9d-3a0b546e1098/Screenshot+2024-04-10+103400.png Toolkit https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/030a9d22-ecab-4a70-960f-52e97142895e/key+terminology+image.png Toolkit - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/f38d08b7-400f-494d-bf65-a5f2ccb33b87/key+facts.png Toolkit - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://datasaveslives.eu/using-national-cancer-registry-data daily 0.75 2022-07-06 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/d807dc32-3c4b-47d4-a42b-72e95478fb58/braintrust_dashboard_case_study.jpg Using National Cancer Registry data - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://datasaveslives.eu/using-national-cancer-registry-data-copy daily 0.75 2022-09-07 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/d807dc32-3c4b-47d4-a42b-72e95478fb58/braintrust_dashboard_case_study.jpg Using National Cancer Registry data (Copy) - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://datasaveslives.eu/casestudyusingrwd daily 0.75 2022-09-07 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/7c8456a9-9014-4ead-ba1c-af42ef247b20/31+Sep+pills-384846_1920.jpg Using real world data (RWD) - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://datasaveslives.eu/patient-registries-are-a-valuable-source-of-real-world-data-rwd daily 0.75 2022-11-25 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/f895cc75-029b-4bca-8a85-992510320a42/Biogen+casestudy+image.jpg Patient registries are a valuable source of real-world data (RWD) - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://datasaveslives.eu/mhealthplatforms daily 0.75 2023-05-26 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/c58fe93f-a02f-44c9-9acc-32e8a4e878a7/gilles-lambert-pb_lF8VWaPU-unsplash.jpg How mHealth platforms can provide pro-active and patient-driven follow-up care - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://datasaveslives.eu/toolkit-1 daily 0.75 2023-11-15 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1634652221068-1T7UF0M2YNHGS1Z1312A/DSL_tookit_cover.JPG Toolkit 1.0 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1634647595960-WO3ZYZZQPXJ021AJ61TA/DSL_table_content.JPG Toolkit 1.0 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1634647610010-4F9V4J2HUAZS3FP18TZQ/DSL_1.JPG Toolkit 1.0 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1634647734978-ITH9RVEJ7SRAZN5T6A1J/DSL_tookit_section_02.JPG Toolkit 1.0 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1634648223285-9LJSYBGANDAKPMDULQMA/DSL_tookit_section_03.JPG Toolkit 1.0 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1634650786014-YDF4LVL5E04PGB11Q7BD/DSL_tookit_section_04.JPG Toolkit 1.0 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1634651310618-SBB1RHHBZ5JLYXPDRJDZ/DSL_tookit_section_05.JPG Toolkit 1.0 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1634652559589-425W9WO3ZT6VIL3182QY/DSL_tookit_section_06.JPG Toolkit 1.0 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1634654075192-QVF0L93Q0L6QIXOO35A5/DSL_tookit_section_07.JPG Toolkit 1.0 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/1634654931824-AKXIKHZDRIJ5L3D2EP0T/DSL_tookit_section_08.JPG Toolkit 1.0 - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://datasaveslives.eu/dslnetherlands-toolkit daily 0.75 2025-02-17 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/17828a8b-70cd-4908-8c60-4251ca32d42a/Introduction+NL.png DSL Netherlands Toolkit - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/48de75dc-9b99-410f-b1bf-93a043904fd0/NL+toolkit+1.png DSL Netherlands Toolkit https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/6f9d127a-6289-4fd4-89d2-443618997fe2/NL+Toolkit+2.png DSL Netherlands Toolkit https://datasaveslives.eu/editorial-board-copy daily 0.75 2025-02-06 https://datasaveslives.eu/secretariat daily 0.75 2025-07-28 https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/e268facf-01ce-441f-b437-5f63665645b2/screenshot-2022-08-02-143814.jpg Secretariat - Milana Trucl Data Saves Lives Coordinator https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/6363d61b-1727-4f3a-afb2-99046c5441b3/gozde_new.jpg Secretariat - Gözde Susuzlu Briggs Data Saves Lives Senior Advisor https://images.squarespace-cdn.com/content/v1/5cc8208b90f904c71c744000/02e401e6-b523-497f-a0e0-f5746b3e5e7d/Flavia.jpg Secretariat - Flavia Topan Communications Manager