Core Strategy Organisations

EHDEN

European Health Data & Evidence Network (EHDEN), an IMI 2 consortium with 22 partners was launched to address the current challenges in generating insights and evidence from real-world clinical data at scale, to support patients, clinicians, payers, regulators, governments, and the pharmaceutical industry in understanding wellbeing, disease, treatments, outcomes and new therapeutics and devices.

 

EIT HEALTH

EIT Health is a network of best-in-class health innovators backed by the EU. They deliver solutions to enable European citizens to live longer, healthier lives by promoting innovation. They connect the right people and the right topics across European borders, so that innovation can happen at the intersection of research, education and business – for the benefit of citizens.

 

EPF

The European Patients’ Forum (EPF) is an umbrella organisation that works with patients’ groups in public health and health advocacy across Europe. Our members represent specific chronic disease groups at EU level or are national coalitions of patients.

 

EFPIA

The European Federation of Pharmaceutical Industries and Associations (EFPIA) represents the pharmaceutical industry operating in Europe.

 

I-HD

The European Institute for Innovation through Health Data (i~HD) has been formed as one of the key sustainable entities arising from the Electronic Health Records for Clinical Research (EHR4CR) and SemanticHealthNet projects, in collaboration with several other European projects and initiatives supported by the European Commission.

 

IPPOSI

The Irish Platform for Patient Organisations, Science and Industry – is a patient-led organisation that works with patients, government, industry, science and academia to put patients at the heart of health innovation.

 

MEDTECH EUROPE

MedTech Europe’s mission is to make innovative medical technology available to more people, while helping healthcare systems move towards a sustainable path. MedTech Europe encourages policies that help the medical technology industry meet Europe’s growing healthcare needs and expectations.

 

MSDA

The Multiple Sclerosis Data Alliance (MSDA) is a multi-stakeholder collaboration working to accelerate research insights for innovative care and treatments for people with MS

 

UNDERSTANDING PATIENT DATA

Understanding Patient Data supports better conversations about the uses of health information. Our aim is to explain how and why data can be used for care and research, what’s allowed and what’s not, and how personal information is kept safe. We work with patients, charities and healthcare professionals to champion responsible uses of data.