Data Saves Lives Toolkits

The Data Saves Lives toolkits aim to equip patient groups and health influencers with the information and materials they need to have a positive dialogue with their communities about health data and to potentially launch their own health data initiatives.

You can download the materials below.

Toolkits

 

Part One: Health Data 101: Understand and Communicate about the Power of Health Data (2021)

 

Part Two: AI: From Science Fiction to Science Fact (2022)

 

Part Three: Establishing a Community-Led Patient Registry (2024)

 

Key Terminology

 

Ten things you may not know about health data

 

The development of these toolkits has been made possible thanks to financial support from the following organisations:

  • European Commission

  • MedTech Europe

  • Novartis

  • Takeda

  • EFPIA

  • Roche

  • The European Artificial Intelligence (A.I) (NEF) Fund

The European Patients’ Forum retains full editorial control of all content of Data Saves Lives’ materials. We are grateful to all sponsors who share in our goals to make the power of health data better understood and communicated by people across Europe and beyond.

ARCHIVE: Toolkit 1.0