Overview - Resources Center

Case Studies

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There is a wide range of ways that patient data can be used to provide better care and improve health. Explore the case studies to learn more. Please let us know if you have good examples to share.

Public Attitude Surveys

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It is important to understand and track public perceptions, attitudes, and feelings around uses of health data and privacy regulations. Understanding how the public balances its trust in different data sharing and health issues provides researchers with valuable insights to ensure that their efforts align with the people they seek to serve.

Glossary of terms

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Most of the terms listed here have been defined in a glossary produced by the Connected Health Cities Programme in the UK. Some have been drawn from the IMI Code of Practice. Some terms have been defined in accordance with international (ISO) standards or European Commission publications.

They have been reproduced or adapted here with permission.

A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Videos

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Patients share why they believe it is important for everyone to support the use of their data.

These video interviews are from some of our collaborating organisations across Europe, namely the European Institute for Innovation Through Health Data & UseMYdata