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Nov
26
2:00 PM14:00

European Health Data Space: Preparing for implementation – What changes for patients?

Join Data Saves Lives for a public webinar exploring patients’ rights under the European Health Data Space (EHDS) and the opportunities and challenges of its implementation across Europe.

Bringing together perspectives from patient organisations, academia, healthcare professionals and the European Commission, the webinar will help participants better understand what the EHDS will mean for patients and how their health data is used. Participants will also have the opportunity to ask questions.

Explore the full programme below.

Register for the webinar

Ahead of the event, explore our EHDS toolkit to learn more about the European Health Data Space.

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May
15
11:00 AM11:00

Webinar: Understanding patients’ rights in the European Health Data Space

In March 2025, the regulation establishing the European Health Data Space (EHDS) entered into force. This landmark initiative aims to empower European citizens by providing them with electronic access to their health data while ensuring secure data sharing to enhance healthcare, policy-making, and research.

On 15 May, the European Patients’ Forum (EPF) hosted a webinar titled "Understanding patients’ rights in the European Health Data Space". Watch the recording here.

This webinar aimed to educate patients, citizens, and stakeholders on the key aspects of the EHDS, focusing on patients’ rights and the practical changes the regulation introduces. It provided a clear explanation of how EHDS enhances personal health data access, sharing, and security while highlighting the role of patient organisations in shaping its implementation. Additionally, the webinar explored the health data literacy efforts needed to ensure that patients and citizens can fully understand and exercise their new rights under the EHDS, empowering them to navigate the evolving digital health landscape with confidence. 

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Nov
26
to Nov 27

Data Saves Lives 5th Anniversary Event

  • Google Calendar ICS

We are delighted to announce the Data Saves Lives 5-year Anniversary Event, taking place on 26th-27th November 2024 at the DoubleTree by Hilton Hotel in Brussels, Belgium.

This invitation only event celebrates DSL’s continued commitment to empower and inspire the patient community and facilitates discussions on multistakeholder collaboration on European Health Data Space, AI, HTA and other key health data literacy areas.

Here you can find the agenda.

For any queries and further information on sponsorship opportunities, please do not hesitate to contact us at DSL-info@eu-patient.eu

We look forward to your attendance and participation!

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