How can your health data save lives?

The power of data starts with you. Good quality health data is vital for health professionals to provide safe and effective care. Health systems need to learn from our collective data to improve the quality, integration and safety of care. Health research needs to be accelerated so we can better prevent disease, improve care pathways and develop new forms of care delivery and treatment more quickly.

Data Saves Lives is a new initiative to promote greater awareness of how health data can be used in trustworthy ways to improve health and care.


How can sharing your health data help others?

The major advances in technology in recent times has resulted in the existence of much more high-quality health related data and high-tech processing power capable of finding important patterns and meaningful results from the data that is available.


In the last 5 years, more scientific data has been generated than in the entire history of mankind


Why use health data?

If we can collate and study the millions of health data stored in separate silos, in secure ways, we expect to see a growing number of new insights which can speed up diagnosis and the development of new medicines, new medical devices and smart applications.

Learn everything you need to know about the benefits for research, healthcare and individual patients.

 
EARLY DETECTION OF A CANCER KILLER  Read about how access to health data helps identify people at high risk of bowel cancer

EARLY DETECTION OF A CANCER KILLER

Read about how access to health data helps identify people at high risk of bowel cancer

HELPING THE FIGHT AGAINST ALZHEIMER’S   A new test to diagnose Alzheimer’s Disease developed from accessing health data records

HELPING THE FIGHT AGAINST ALZHEIMER’S

A new test to diagnose Alzheimer’s Disease developed from accessing health data records

Learn more about the benefits for patients, healthcare services and medical discovery.


Protecting your health data

It’s important everyone should be able to find out about how data is used and the protection in place. The more informed people feel, the more likely they are to support the use of data sharing.

A person’s health data must be kept safe and secure. Surveys show that while people are generally comfortable with anonymised health data being used for improving healthcare services, research and where there is a public benefit, they also value being able to make decisions about the use of the data collected from them. People want to have the power to decide who gets to use the data, and for what purposes.


73% of EU citizens want to share health data on the precondition that data is secure and only accessible by authorised parties

source: ec.europa.eu/health/

A patients view on how data can help

Data story: “A friend’s life was transformed by a revolutionary drug”
— Robert Johnstone

Public surveys about health data use

connectedhealth_jury.jpg

Citizens’ Juries explore which uses of health data are acceptable to the public

Citizens from across north west England came together to discuss the planned and potential uses of health data in the Connected Health Cities programme.

Know more