Health democracy for health data in France

Health democracy for health data in France

Access to healthcare data has been a major concern for patients and healthcare users’ associations for many years in France. As far back as 2008, when France Assos Santé set up a national task force dedicated to digital healthcare, the exploitation of the French National Healthcare Data System was already on our agenda. This fall, we have reached a new milestone with the launch of a new service in collaboration with the Health Data Hub, a significant step in our commitment to enable access to healthcare data and its uses.

DSL x EHDEN Patient Registries Bootcamp

On 5-6 December 2023, the third Data Saves Lives Ambassador Training Bootcamp was held in Brussels, Belgium, in partnership with the European Health Data & Evidence Network (EHDEN). The bootcamp centred on the process of establishing community-led patient registries. The ultimate aim was to empower participants with insights into the steps involved and the pivotal role of patient groups in shaping registry design for community benefit.

DSL Ambassador Training Bootcamp

On 28-29 March 2023, the second ever Data Saves Lives Ambassador Training Bootcamp was held on the top of Artificial Intelligence (AI) in Lisbon, Portugal. The purpose was to equip regional and national level organisations with a better understanding of the opportunities and challenges presented by the use of AI in healthcare and the potential role of patient groups in influencing the design and use of AI to improve the lives of their members. This blog gives an insight into the hot topics that were discussed as well as a summary of the key insights.  

Reflections on our Ambassador Training Bootcamp - #DataSavesLives

In October 2022, we hosted our very first Data Saves Lives Ambassador Training Bootcamp in Prague, Czech Republic. The purpose was to equip regional and national level organisations with practical tools and tips on how to advocate for and have informed dialogue around health data sharing. This blog gives an insight into the hot topics that were discussed as well as a summary of the key insights.