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Patient registries are a valuable source of real-world data (RWD)
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Data Saves Lives

Home
Health Data
Overview
What is health data?
What is big data?
Why is health data important?
Data protection
About
What is Data Saves Lives
Editorial Board
Advisory Board
Secretariat
Core Strategy Organisations
Governance and Editorial Principles
#DataSavesLives
Contact
Case studies
Introduction
Patient registries are a valuable source of real-world data (RWD)
Using real world data (RWD)
Using National Cancer Registry data
Alzheimer's Disease
Colorectal Cancer
Liver Disease
Big data
How mHealth platforms can provide pro-active and patient-driven follow-up care
Toolkits
Blog
Events
Resources
Overview
Case Studies
Public Surveys
Glossary
Videos
Blog
Nicola Bedlington

Nicola Bedlington

Nicola Bedlington has been European Patient Forum's Special Advisor since late April 2019. She used to be Secretary General of EPF, and was previously the Executive Director since the setting up of the EPF Secretariat in June 2006.

She worked as an external expert for the European Commission on disability policy and NGO cooperation and was the first Director of the European Disability Forum during the 90s. More recently she led the ENSI Secretariat, an OECD initiated international governmental network on education and sustainable development.

Dipak Kalra

Dipak Kalra

Dipak Kalra is President of The European Institute for Innovation through Health Data (i~HD). He plays a leading international role in research and development of Electronic Health Records, including the requirements and models to ensure the robust long-term preservation of clinical meaning and protection of privacy.

He leads the development of ISO standards on EHR interoperability, personal health records, EHR requirements, and has contributed to several EHR security and confidentiality standards.

Gözde Susuzlu

Gözde Susuzlu

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