‘Even though we accept what Lucas has, we want him to have the best life possible – free from seizure and pain. That’s why sharing health data and taking part in clinical research is so important to us’
How understanding data protection and collection techniques deepened our understanding of the prevalence of chronic pain
Building citizen trust in the digital society
From this work, we could conclude that technology is not considered as the main barrier to data sharing. As one of the experts in our last event concluded, technology will always find its way if a culture of trust is settled first. Indeed, TRUST is seen as the cornerstone of this equation – it is, however, a complex concept and it needs to be fully explored and discussed if we wish to find the right actions to enhance it.
Bringing health data back to people
Despite Security Threats, Data Continues to Save Lives
Last week, any fears we had about our personal health data being safe were intensified when the records of tens of thousands of psychotherapy patients in Finland were stolen. As if this wasn’t enough to increase our anxiety, these confidential records were used to blackmail over 40,000 patients.
So, after this, should I still be sharing my data?
by Nicola Davies
Highlights from our October public events: tweet chat and webinar
October was a busy month for the Data Saves Lives (DSL) initiative, as we held two live events to raise awareness of different issues affecting the best practice use of health data with insights from a variety of expert and high-profile panellists.
For those of you who weren’t able to join our live chat on Twitter or our webinar event, it’s not too late to catch up on the highlights…